Wednesday, December 21, 2011

A Look at Health and Developmental Disability

Keeping developmentally disabled adults healthy: Q & A with The Arc San Francisco’s Alan Fox
-Laura Shumaker, Writer & Autism Advocate, SF Gate

My son Matthew, who is 25 and on the autism spectrum, is the most stoic person I know–so much so that by the time the time tells me he is not feeling well, he’s already really, really sick. Since a recent illness and hospitalization (from which he has recovered, thankfully) I’ve learned of the importance of monitoring the health of adults with developmental disabilities, and teaching them to advocate for themselves.
The topic is a professional and personal passion for Alan Fox, the Chief Operating Officer for
The Arc San Francisco, a non-profit service and advocacy organization for adults with autism, Down syndrome, cerebral palsy, intellectual and developmental disabilities and their families living in San Francisco and San Mateo counties. Alan is also the parent of a young son with autism.
Alan has a unique perspective on the state of services for people with autism, both as a leader in an organization that provides services, and as someone who must find them for his son. He oversees a number of programs at The Arc, including independent living support services, employment placement, and ArtRearch, an innovative program that teaches adults with developmental disabilities to be professional artists. He also oversees support and outreach activities to families of loved ones with developmental disabilities.
Alan will talk about his health advocacy work for adult with developmental disabilities at
UCSF’s 11th Annual Developmental Disabilities Conference March 8 and 9. This is a conference that I recommend highly to both parents and professionals as it provides an invaluable opportunity for dialogue among experts and families in the care and future of individuals with disabilities.
Q) My son Matthew doesn’t like to tell people when he isn’t feeling well, and by the time his caregivers figure it out, he is really sick! How does The Arc of San Francisco monitor the health of its clients?
A) My son too hardly ever complains of feeling ill and never calls attention to injuries which occurred outside my personal observation. Parents are usually adept at sensing when their child is in pain but a low-grade fever or headache is harder to figure out. When your child has a lot of idiosyncratic behaviors to begin with, an odd behavior that could indicate not feeling well may be hard for even the most attentive parent to discern as unusual.
My wife and I have to play close attention to signals of distress and I visually examine my son for wounds daily. He will hardly ever alert us to an injury. When he does have a wound, we have to carefully monitor it as it heals, because Joe tends to pick off scabs and re-open healed wounds. Some wounds he got when he was a child took months to heal and have left many visible scars. I have often heard that some people with autism are hyposensitive to pain, and while this idea may have some scientific merit, I think it is pernicious because it tends to minimize the urgency of potential health concerns and should be challenged whenever it is raised. For example, I try to over-medicate. That is, on the theory that people with developmental disabilities tend to be under-medicated, at any sign of illness or elevated temperature, I am a lot quicker to dispense the children’s acetaminophen to him than to my neurotypical child.

The Arc monitors the health of adults with developmental disabilities in a few ways. At our Seniors center where we serve elders, The Arc employs an on-site RN who performs basic health surveillance. She has worked in geriatrics for many years and through her knowledge and experience with our clients, is able to provide regular screening and earlier response that prevents many health problems from worsening.
Clients enrolled in our Health Advocacy service are assigned to a single Health Advocate who coordinates that client’s health care. The Health Advocate not only provides case history and diagnostic information to the doctor, but also can provide in-the-moment technical assistance to the client’s clinical care team, who are not likely to have a good command of the health impacts of developmental disability. Health Advocates partner with the clinical care team to ensure that the client complies with medical orders after the visit is over. All Arc staff are certified in first aid and CPR, but our residential services staff become more involved in client health care than other staff. A key idea we teach to our staff is that your gut is a good indicator, so if you think something is wrong with your client, then something probably is wrong.
Q) When my son was in the hospital recently, it was clear that few knew how to communicate with him. How do your clients seek medical care? With caregivers? On their own?
A) That must have been pretty scary for him and for you.
It really depends on the client’s level of development, their ability to express themselves, and whether they have family members in their lives. Communication can be difficult for a lot of

people we serve at The Arc and medical issues can make communications harder or even impossible. If family members are present, they likely have a case history available and also ability to communicate with the person. The Arc always seeks to engage family members in a person’s health care team. Often, it is family members who are the first Health Advocates and the ones who will seek medical care for our client.
For clients who do not have family members, The Arc staff often act in loco parentis. We prefer that this be done in accordance with an advanced health directive and encourage people we serve to complete one as a matter of course. Medical care is sought also at times by staff of board-and-care homes where many people with developmental disabilities reside after they no longer live with family members. People we serve will commonly present to their Arc staff problems they need help solving, and this includes problems with their health.
But your question also speaks to the larger issue of access to health care. I imagine most of your readers would be shocked to learn how difficult it is for those who depend on public health insurance to see a doctor. After all, the public is spending itself into poverty on health benefits, isn’t it? Dentistry, podiatry, and other critical services are simply not offered to people who are dependent on public health benefits, including most adults with developmental disabilities. Even when these services were available, they were limited. Medi-Cal would not pay for preventive dental care, but would pay for tooth extraction! Anyone who cares can look in the mouths of the people we serve, and see the dental caries, the inability to chew nutritious food, and the results of years of lack of preventive care. The lack of access to health care by operation of the insurance system is only aggravated by the lack of clinicians who are trained, qualified, and who feel competent to treat people with developmental disabilities as patients.
Q) Many of your clients have aging parents who are overwhelmed by the needs of their adult children. Your thoughts on this problem?

A) This is a big problem and it will only become bigger. For years, we have told parents it was wrong to institutionalize their children with developmental disabilities, we want their children to live with us, as a community. But we have not kept our promise to ensure that the services that were formerly available in institutions would be provided more cheaply, and more appropriately, in the community. Now we are approaching a generational inflection point where devoted parents who have largely shouldered the cost and the work themselves will no longer be able to depend on the ever more meager help provided by underfunded charities like The Arc. If you have a child with a developmental disability, the time to begin planning transition to adulthood should begin by age 16. That gives just about 6 years to make a good plan for what adult life should look like. At The Arc, we have received phone calls from anxious parents on the Friday their child graduated from high school, asking us where they should go on Monday! Parents who have not planned will put their child in an otherwise avoidable predicament.
In my experience, it is relatively rare that parents choose to keep their adult child at home; it is more often the result of a lack of choices. We love Joe unconditionally, but I do not want my child to live with me and my wife as we age! I want him to be independent, happy, and to live in the community like people without developmental disabilities do. I want him to have whatever help he needs to do this. My wife and I know we will never be able to make that happen on our own and we question whether the commitments made to parents like us by the State of California in its laws really have any meaning anymore. We understand life is not fair, but that our leaders are failing us is clear, and unfair.
The one piece of advice I would offer regarding health care is to be sure to find an adult practitioner when your child reaches maturity. While developmental pediatrics is a very well developed medical specialty, there are too few adult practitioners who are trained, qualified, and feel competent to serve older youth and adults with developmental disabilities. Parents need to create more demand for this field and need to ensure their adult child is no longer being treated on a pediatric panel.
Q) It’s almost flu season! Does The Arc encourage its clients to get flu shots?
A) Absolutely! We always emphasize preventive health care and flu shots are an effective prevention method. They are highly indicated for people with developmental disabilities (and their staff) because they often have co-occurring issues or prescriptions which compromise their immune systems and ability to fight infection. The Arc trains its staff on health and safety issues at least every quarter. We have trained staff on how to cough and sneeze safely, how to wash their hands properly, earthquake safety, injury prevention, and other health issues. Our safety committee meets quarterly and reviews worker’s compensation claims and injury reports, develops correction action plans, drills on evacuation, and maintains our emergency procedures. All staff carry client emergency cards with them when in the community and also carry first aid kits.
Q) How healthy are your clients overall?
A) We survey Arc clients annually on their health and they report themselves as being fairly healthy. In 2011, 71% percent said they feel healthy “most of the time.” About the same percentage report it is “easy” to see a doctor or get medicine overall.
In relating to your question above about aging family members, 42% of clients who live with family members say their family members are sick “half the time” or more.
However, The Arc also tracks incidents where clients have a medical emergency, injury, or illness leading to emergency medical response or hospitalization. This measure has significantly increased in the last few years reflecting both the increasing age and fragile health of people with developmental disabilities. In the year ended Jun. 30, 2011, reportable medical incidents increased 79% compared to the year ended Jun. 30, 2010. In the quarter ended Sep. 30, 2011, medical incidents increased 300% compared to the quarter ended Sep. 30, 2010. Medical incidents have been the largest category of reportable incidents for 4 consecutive years.
The sad fact is although the state collects reams of data about people with developmental disabilities, no one really knows how sick or how healthy Californians are with developmental disabilities.
Q) Does The Arc have counseling for nutrition/exercise/wellness?
A) Everyone knows that eating right and exercise are the foundations of good health, but these remain a challenge for most people with developmental disabilities. Many people take medication that affects their appetite, ability to eat, and metabolize food. As mentioned above, poor dental care can lead to poor digestion because the teeth cannot fully perform their digestive function. Diabetes is fairly pervasive as is obesity. Most people we serve at The Arc can afford to buy good food but need help to shop and cook. Sometimes our clients make poor choices about eating and do not take advice about how to lose weight. The people we serve generally cannot afford to go to a gym or buy equipment so their choices for exercise are limited, especially if they need support or encouragement to exercise.
We have found group exercise to have enormous benefits and offer fitness classes to our clients, including clients with ambulation and mobility disabilities. Twice a week a fitness instructor comes on site and does classes so that everyone, with a diversity of fitness levels and abilities, has a chance to get exercise.
The Arc also has a working kitchen where every day our staff teach clients how to shop, plan and prepare meals. Being able to take care of nutritional needs isn’t just about good health. Being able to prepare one’s own food is a critical skill for living independently in the community.
Q) What is the biggest health problem your clients face?
A) Wow, this is a tough choice. I would say the biggest health problem is our clients’ own inability to fully function as partners in the way the U.S. health care system seems to expect of patients. Too much is left to patients to do on their own, for example; maintaining case histories, coordinating specialty care, and complying with treatment plans. Think how hard this may be for you to do for your own health and then consider how hard it would be to do for someone else, let alone someone who may not be able to communicate with you. The Arc and its partners have proposed a reform model that we think would make the system work a lot better for people with developmental disabilities, but so far, we are still working to generate policymaker interest in it

Alan Fox, The Arc San Francisco COO is the 2012 recipient of the Shriver Award from UCSF in recognition of his efforts, with UCSF and many other community partners, to reform the health care system to provide better access and care for individuals with developmental disabilities

Learn more about The Arc San Francisco HERE.
More about Laura Shumaker at

Hear more of Alan’s conversation about The Arc’s Health Advocacy Program by registering for the UCSF Developmental Disability Conference HERE.
The conference is presented by the UCSF School of Medicine and the UCSF School of Nursing, and is open to family members and caregivers of individuals with developmental disabilities.
A generous grant from the
Special Hope Foundation, a nonprofit 501(c ) 3 organization, made this year’s meeting possible, (and last years as well).

Thursday, December 1, 2011

Holiday Gift Cards for Clients Drive

Dear Friends,

With the season of sharing upon us, I invite you to help us fulfill the wishes of our many clients by purchasing a Gift Card for someone in need. Gift Cards are a great way to share the holiday spirit and empower people with developmental disabilities to make their own purchasing decisions.

Gift Cards must be delivered to The Arc by December 19, so don't delay!

Clients with a Holiday Gift Card Wish
Meet just a few of the clients hoping for a special gift this year, and learn how to purchase Gift Cards that will make their spirits bright.


Shop Online and Support The Arc
Make your online holiday purchases through, and 5% of your purchase will be donated to The Arc San Francisco. Choose from over 3,000 popular retailers.

Your Meaningful Donation
Your support brings hope, health and opportunities to all those we serve, and it's so easy to
Donate Online. For all you do to make the season brighter for our clients, I thank you and wish you the happiest of holidays.

Dr. Glenn Motola , CEO

P.S. All donations are tax deductible to the full extent allowed. The Arc San Francisco Federal Tax I.D. number is: 94-1415287.

Wednesday, November 16, 2011

City of San Francisco Honors The Arc

We are pleased to be honored by the City of San Francisco with a Certificate of Honor " appreciative public recognition of distinction and merit for outstanding service...on its 60th Anniversary."

Members of The Arc are delighted to be acknowledged by the Board of Supervisors for "...60 years of advocacy on behalf of people with intellectual and developmental disabilities, empowering these San Franciscans to live lives of self-determination, dignity and quality in our community since 1951."

Thank you to Supervisor Jane Kim who sponsored the Certificate of Honor, to all the Supervisors who support us, and to all of you in The Arc's extended family--our clients, parents, staff, advocates and community partners--who have such a huge part in our success.

Dr. Glenn Motola, CEO

Tim Hornbecker, Advocacy and Public Policy Advisor

Monday, October 24, 2011

Arc Angel Breakfast a Success

Over 300 guests attended the 10th Annual Arc Angel Breakfast on October 14th, celebrating our 60th anniversary year in style at the Westin St. Francis Hotel on Union Square.
Keynote speaker Peter Magowan set the tone for the inspiring "We Can Do It!" theme, highlighting the benefits of hiring Arc clients at the two organizations he helmed, Safeway and the San Francisco Giants.
The event raised over $170,000 and garnered 17 new Arc Angels who made multi-year financial pledges to help sustain our employment, health care and independent living services. SEE COMPLETE LIST.
The program also debuted a powerful video featuring clients' personal stories of struggle and achievement. WATCH "WE CAN DO IT!" VIDEO. "I'm so proud of our clients and grateful to our supporters who play a vital role in the success of our mission," said CEO Dr. Glenn Motola. "Together, we can make a difference."
Enjoy our photos and tip your hat to all our event speakers, volunteers and donors who made this 60th anniversary friend- and fund-raiser such a success.

(Photo caption)
CEO Dr. Glenn Motola and friends singing
'Happy Birthday!' to The Arc.

Friday, August 12, 2011

Back to School; Back to Bullies

From Disability Scoop
Study: Bullying More Common Among Students with Disabilities
By Michelle Diament

Kids with disabilities and other special health care needs are at increased risk for bullying and generally show less motivation to succeed in school, new research indicates.
The findings come from a study published this week in the journal Pediatrics that looked at more than 1,450 students in fourth through sixth grade attending three rural school districts in Maryland and West Virginia.
Through surveys of the students and their parents, researchers found that about 1 in 3 kids in mainstream classrooms at the schools had some type of special health care need ranging from asthma and attention deficit hyperactivity disorder to emotional and behavioral disorders.
When the survey responses were matched up with school records, it became clear that children with disabilities missed more days of school and had lower grades, according to the research team from the University of Pennsylvania, Johns Hopkins and Marshall University.
These kids also reported higher levels of bullying and were less likely to feel safe in school, the study found.
Moreover, when it came to academics, students with special health care needs were less likely to report that getting good grades mattered to them.
“These problems threaten both their well-being as youth and their future flourishing as adults,” the study authors write. “Health and school professionals will need to work together to identify these children much earlier, ensure that they receive appropriate supports and services and monitor the effectiveness of services.”
Of the students surveyed, boys were twice as likely as girls to have special health care needs. Children from lower income households were also at increased risk for falling into this category, which could explain the high rate of the conditions among students in the study sample.

July 29, 2011

Monday, July 18, 2011

New State of California "Employment First" Policy

To All Advocates:

On July 27, 2011, the State Council on Developmental Disabilities will vote on an “Employment First” Policy for California. That policy will be recommended to the Legislature to become law in California. The Employment First policy has a very good intent – to improve employment outcomes for people with developmental disabilities.

The Arc strongly supports the effort to improve employment outcomes for people with developmental disabilities. And we certainly support our friends at the State Council. But we have a difference of opinion about what is the best wording for an Employment First policy for California. The State Council will vote for this wording to become law in California:

“It is the policy of the State of California that integrated competitive employment is the priority outcome for working age individuals with developmental disabilities. In plain language: WORK IS FOR ALL”.

We object to this wording because, in California, every person with an intellectual and developmental disability has the right, through the IPP, to determine his or her own goals. In California, the State is not supposed to tell people what their “priority outcome” must be. We know there are people who believe that anyone who objects to the proposed wording is just trying to protect the status quo. If the status quo is the IPP, we agree!

We want a strong Employment First policy that improves employment opportunities for people with developmental disabilities, without weakening the right of every individual to determine his or her own goals through the Individual Program Plan (IPP) process.

The Arc of California is urging the State Council to adopt an alternative statement – one that respects the IPP and the individual’s right to choose. We invite you to do the same. Please see the sample below.

Please share your comments with the State Council before they vote on July 27!

Send an e-mail to:

Write to: State Council on Developmental Disabilities

1507 21st Street, Suite 210

Sacramento, CA 95811

Be sure to request that all Council members receive a copy of your message.


Dear State Council on Developmental Disabilities;

I am writing to express opposition to the draft Employment First policy unless it is amended. Please transmit my comments to all members of the council.

The Arc of San Francisco strongly believes in paid employment and the competitive labor market. The Arc closed its sheltered workshops 8 years ago to promote the inclusion of our clients in paid employment.

But the policy as written subverts the right of people with developmental disabilities to set their developmental goals through the IPP process.

The draft policy does not account for the state’s own actions in continually reducing funding for employment programs that have significantly reduced our capacity to provide the employment and job placement services presumed available by the Employment First policy.

The draft policy does not account for the state’s dismal performance generating new jobs and economic growth, placing people with developmental disabilities at even further disadvantage when pursuing paid employment in a competitive labor market.

The draft policy does not account for the state’s failure to provide a free, appropriate public education for youth with developmental disabilities that adequately prepares students for paid employment when they leave school.

The draft policy does not account for people with developmental disabilities who can afford not to have paid employment, are too sick to have regular paid employment, or wish to pursue higher education through community college or 4-year institution.

The draft Employment First policy will not create any new jobs or new placements in paid employment for clients served by The Arc of San Francisco. The draft policy will subvert choice for people with developmental disabilities in California.

Please vote NO and adopt a policy that respects individual choice and the IPP.


Alan S. Fox, M.P.A.

Chief Operating Officer

Monday, June 27, 2011

Wells Fargo Bank Gives a Boost to Arc Job-Seekers

Arc Job-Seekers Join Staff from Wells Fargo at a Presentation About Successful Job Interviews

The Arc, the Rotary and Wells Fargo all think alike: more jobs for our clients means more dignity, pride and independence for all people with intellectual and developmental disabilities.

This week, Wells Fargo Foundation’s Katy Johnson presented The Arc with $10,000 for our Supported Employment program. Wells’ HR Strategy Consultant, Eric Schmautz is a longtime Arc volunteer, (remember the tall smiling fellow in the chef’s hat at our Thanksgiving luncheon—that’s him!) and a big booster of more opportunities to bring clients of The Arc in to the workforce, and we thank Eric, Katy and all the Wells team for their vision and support of our mission.

As part of the Rotary “We Gotta Job” project, Wells Fargo hosted 7 client job-seekers at their downtown office, followed by mock job interviews.

The presentation included tips on how to be successful in a job interview, including a note to remember to ask for the job.

At the close of the presentation, one of our clients respectfully raised her hand and asked, "What about here? Do you have any jobs at Wells Fargo?”

Now that’s the right job-seeking attitude!

Tim Hornbecker, CEO

Wednesday, June 1, 2011

CDC Study Reports 17% Increase in Developmental Disabilities

Developmental disability is on the rise in the U.S. Between 1997 and 2008, the number of school-age children diagnosed with autism, ADHD, or another developmental disability rose by about 17 percent, a new study showed.
That means roughly 15 percent of kids - nearly 10 million - have such a disability.
The numbers were based on information collected from parents, who were asked whether their kids had been diagnosed with a variety of developmental disabilities, including cerebral palsy, seizures, stuttering or stammering, hearing loss, blindness, and learning disorders, as well as autism and ADHD.
Boys were twice as likely to have a developmental disability, according to the study, which was published in the June 2011 issue of Pediatrics. And except for autism, developmental disabilities were more common among children from low-income families.
"We don't know for sure why the increase happened," study author Sheree Boulet of the Centers for Disease Control and Prevention, told Reuters. There is now a bigger emphasis on early treatment, she said, and greater awareness about the conditions among parents.
But Philip Landrigan of the Mount Sinai School of Medicine in New York City, told USA Today that improvements in diagnosis can't fully explain the increase. Research suggests that environmental chemicals - including pesticides and the phthalates found in soft plastics - can affect kids' mental development, he said.
Whatever the cause of the increase, experts said the finding should remind parents to make sure their kids get screened. As Alison Schonwald of Children's Hospital Boston told USA Today, "It's great to diagnose them early, so we can intervene early and help them reach their full potential."
The Centers for Disease Control and Prevention has more on developmental disabilities.
March 23, 2011 by David Freeman (CBS News Health)

Monday, May 23, 2011

DDS Hearing Update

Dear Advocates,

The Oakland DDS hearing with Terri Delgadillo, Executive Director, was attended by over 300 parents, self-advocates and advocates from the Bay Area, especially The Arcs of San Francisco, Alameda and Contra Costa. After a 2 1/2 hour wait in line in the cold wind just to get into the Federal Building for the hearing, we made our testimony. Terri Delgadillo responded to my concern that there were no details to the DDS Headquarter and Developmental Center budget cut proposed savings of 55 million dollars. She will send out a chart with the details per our request.

The Arc has supported AB171, the Autism Insurance Bill, which was not in the budget proposals but we recommend. The Arc has reserved our support for many of the proposed recommendations by DDS until they actually publish the implementation details in Trailer Bills that will be part of the Governor’s budget. The devil is indeed in the details, which hurt us in last year’s budget.

Please keep advocating. Disability Capitol Action Day will be on May 25, Wednesday, 10 AM – 2 PM. A March to the Capitol, Educational Rally, and Resource Fair will take place in front of the Capitol Building with over 3,000 advocates expected. Please contact me if you are interested in attending.

Thank you,
Timothy Hornbecker, CEO

Thursday, May 5, 2011

Calling All Advocates

Dear Arc of San Francisco Advocates,

I want to make sure that you have the local hearing location and time on the proposed savings (Budget Cut) of $174 million from the Department of Developmental Services. Please attend if you can, call in, or send your comments.

See the complete DDS Proposal here.

I will be sending recommendations from The Arc California and the Lanterman Coalition hopefully by Thursday, 5/5.


DDS Hearing:
Monday, May 9, 2011 - Oakland
1:00 p.m. to 7:00 p.m.
Federal Building Auditorium
1301 Clay Street, Oakland 94612
DDS Public Forum Conference Call Number: (800) 288-8968

Written input is also welcome and should be submitted by May 9, 2011, to Patti Samuel at the following address. For additional information, please contact Patti at (916) 651-1484.

Department of Developmental Services
Office of the Director
1600 9th Street, Room 240, MS 2-13
Sacramento, CA 95814

Thanks for advocating on behalf of The Arc,

Timothy P. Hornbecker

Tuesday, May 3, 2011

Fight to Protect Medicaid

Then fight to preserve it!

Do you or someone you know:

* receive home and community based services from your state developmental disability agency?
* rely on Medicaid to pay for doctor's visits and other health care?
Unless we mobilize to support the Medicaid program, these critical services could disappear for many people. The U.S. House of Representatives has already voted to:
• cut Medicaid by 20% (or about $770 billion over 10 years)
• cap the amount the federal goverment spends on it. The funding would not keep up with health care inflation.
• block grant it to the states. This means that states can spend the money almost any way they like and can just cut out groups of people or services. They could even return to placing people in institutions. (Click here for more information)

Take Action

Call your U.S. Senators today and ask them to speak up and support The Arc in this fight. Contact your Senator today.

Here is what to say:
• Medicaid is a lifeline for people with I/DD and we need you to be our champion;
• Please oppose block grants or caps for Medicaid that would hurt programs that help people with intellectual and developmental disabilities live in the community; and
• Don’t risk the health and safety of people with I/DD by slashing funding for Medicaid.

Wednesday, April 27, 2011

New Housing, New Life for Sarah

This week, 19 new apartment units for people with developmental disabilities opened, and we're working to secure the next 14 units.

Dreams of independence (in housing that is actually affordable--and green!) are coming true at last. Check out Sarah as she gives us (and Senator Pelosi, Mayor Lee and a host of other VIPs) a tour of her new digs.

Photo: Mike Kepka/The Chronicle


Meredith Manning
Marketing and Community Relations Manager

Monday, April 18, 2011

Hands Across SF and CA

The Arc advocates and self-advocates joined hands this past Sunday to raise awareness of budget cuts and tuition increases (from $26 to $66 per unit) to Community Colleges across the state. Services and classes for students with disabilities have been cut by 41%! Many of our clients take computer and other classes at City College, as well as City College instructor Bob Fitch teaches classes at The Arc. Our advocates literally joined Hands Across California with other groups and celebrities, including MC Hammer, Arsenio Hall, and Ryan Seacrest! “We joined with over 200 other volunteers from the City College of San Francisco downtown campus and Paul Johnson, Department Chairperson for the Disabled Students Programs and Services”, according to Joseph F., chair of The Arc Client Advocacy Committee. Other self advocates included Clinton, Gina, Andrew, Chloe, and parents Ron Bixler, Sally Spencer, Pat Napoliello, and myself, lined up and down Market Street holding The Arc Banner and smaller signs “Why Hold Hands? To Save Our Community Colleges!”

Tim Hornbecker

Friday, April 15, 2011

Hands Across SF & CA This Sunday

Dear Advocates and Self Advocates, INFORMATION FLYER ATTACHED! Services for Disabled Students Programs and Services at our California City Colleges have been cut back 41% in the last couple of years. Now the legislature is considering further cuts to the community college and the possibility for increasing tuition fees to $66 per unit from the current $26, according to Paul Johnson, Dept. Chair, DSPS, City College of San Francisco. You are being invited to literally join Hands Across California and San Francisco this Sunday, April 17, 1:30-2:30 PM with Community College supporters across California. They hope to form a human chain across the state! I will be at Van Ness and Market in front of the Bank of America with some of the signs made by our clients at 1:30 PM. I hope that some of you can join me, and please try to get friends, family members and self-advocates to join hands and hold our signs until 2:30 PM. We want to keep having our clients attend classes at City College and continue having their college instructors at The Arc! If you have any trouble opening the attached flyer, there will be flyers at our front desk on Howard Street. Hope you can participate! Thanks, Tim Timothy Hornbecker, CEO

Tuesday, April 12, 2011

SF Chronicle Op-Ed: "Better Off in Prison?"


Our Development Director wrote a very compelling piece that was published in The San Francisco Chronicle. Take a look.


Timothy Hornbecker, CEO

Monday, April 4, 2011

Self Advocates in Sacramento

Self Advocates in action! Board member Liz with Tatyana, and Anna advocating in Sacramento against the 10% cut to ICF (Intermediate Care Facilities) homes in the community, as well as the 10% cut to fees paid to medical staff along with service cuts and increased co-pays for Medical. They joined over 150 other people with developmental disabilities from around the state, including GGRC and our neighbor Lifehouse from Marin.

Timothy Hornbecker
Chief Executive Officer, The Arc of San Francisco

Friday, March 25, 2011

Senator Yee to The Arc: 'This is Life or Death'

At today's press conference at The Arc, myself, Senator Leland Yee and many advocates spoke about the unfair share of pain that people with developmental disabilities face in the state budget cuts. See photos:

Over half a billion dollars (including federal matching dollars) is the largest cut to any one group on the chopping block in Sacramento.
Our safety net is disappearing. Our clients will either be out on the street or have to go to a $300,000 per person (per year) state institution.
What a waste--of client lives, of taxpayer dollars.

Here are quotes from today's speakers:

Jackie Kenley (parent and advocate): "These cuts are a step backwards--and they will cost us more money, not less, over time."

Hermie Yema (Family Home, Inc.) "My clients need medical care and close monitoring and support. Where will they go--who will help them if my doors are closed because I cannot afford more cuts?"

Matt Tarver-Wahalqyist, Opportunity for Independence: "The truth is, clients will die as a result of these cuts."

Senator Leland Yee: "This isn't the end of it--it's important to let us know...let legislators in Sacramento know that there is a serious human toll to these cuts. But there are things we can do; language to bills we can add. My message to you is don't give up. This is life or death."

Timothy Hornbecker
Chief Executive Officer, The Arc of San Francisco

Thursday, March 24, 2011

Senator Yee at The Arc

To Clients, Staff, Families and Supporters:

Senator Leland Yee will be at The Arc of San Francisco (1500 Howard Street) this Friday, March 25th, 12-12:30 AM upstairs in our large room. He will be holding a Press Conference to speak about the ‘budget cuts to people with disabilities’. I have been asked to speak for 2-3 minutes, but I’m hoping that (parent)Jackie Kenley and her daughter will speak to let the media know how they will be impacted! I know that this is during the workday, but please attend if you can. We will have a large number of client self-advocates and staff here. This is part of our new community organizing and advocacy efforts. Our parents and family members from The Arc’s Advocacy Committee will also try to attend.

Thanks for your advocacy; see you Friday at noon!


Tim Hornbecker, CEO

Monday, March 21, 2011

Calling All Advocates to Let Policymakers Know What the Lanterman Act Means to You

The Lanterman Act in 2011 and Beyond
Dear Friends:

The Senate Human Services Committee chaired by Senator Carol Liu (from the same district Frank Lanterman represented, and the winner of The Arc’s 2009 Legislator of the Year Award)) will be having an Oversight Informational Hearing this Tuesday March 22, 2011 from 1:00 pm to 4:30 pm in the John Burton Hearing Room (4203) in the State Capitol, Sacramento, California.

Come and deliver a message to policymakers with your testimony. Your voice and your face will tell policymakers why the Lanterman Act is so important to our community and why so many of us oppose changing it from the current individualized personal approach to the proposed set standardization model.


Opening Remarks
Senator Carol Liu, Chair, Senate Human Services Committee
Other members
The Lanterman Act: Past, Present, Future
Michal Clark, Director, Kern Regional Center
Kiara Hedglin and Nickole Bouslog, Consumer Perspective
The Individual Program Plan and Purchase of Service Best Practices
Catherine Blakemore, Executive Director, Disability Rights California
Catherine McCoy, Service Coordinator, San Andreas Regional Center
Rocio Smith, Executive Director, Area Board V
Steve Miller, Executive Director, Tierra del Sol Foundation
Accountability, Transparency and Beyond – Implementation of the 2011 DDS Trailer Bill
Jim Burton, Director, Regional Center of the Easy Bay
Doug Pascover, Executive Director, Arriba Independent Living Services
Nancy Chance, Executive Director, Training Toward Self-Reliance
Audit Updates
Terri Delgadillo, Director, Department of Developmental Services
Elaine Howle, State Auditor, Bureau of State Audits
Carol Fitzbiggons, Director, Inland Regional Center
Vicki Smith, Executive Director, Area Board XII
Public Comment & Concluding Remarks

I hope to see you Tuesday.


Greg deGiere
Public Policy Director
The Arc and United Cerebral Palsy in California

P.S. Please forward ward Action Alert far and wide.

Thursday, March 17, 2011

State Budget Update

Courtesy of California Disability Community Action Network
State Budget Update

Republicans Give Support to Spending Reductions – But Still No Support Yet for Revenue Piece of Governor’s Plan – Spending Cuts Budget Trailer Bills For Medi-Cal, IHSS, SSI/SSP, Developmental Services, CalWORKS, Adult Day Health Care, Multipurpose Senior Services Program, Proposition 63 Mental Health, Proposition 10 Head Next To Governor – Elimination of Redevelopment Agencies Trailer Bill Falls 1 Vote Short in Assembly – Will Likely Be Taken Up Thursday – Both Houses To Meet 11 AM Thursday

SACRAMENTO, CALIF (CDCAN) [Updated 03/16/2011 – 9:23 PM (Pacific Time) – The California Legislature took a major step in what it hopes will help to solve the State’s enormous budget crisis, by approving – with Republican support – several of the budget related bills dealing with over $6 billion in cuts in State general fund spending to health and human services, and reductions in general government that largely follow the Governor’s proposed reductions.

The Assembly however fell 1 vote short of approving the $1.5 billion cut to Redevelopment Agencies, with the last vote 53 to 23 taken just before the Assembly adjourned this evening at 09:23 PM. The Senate adjourned at 09:04 PM.

But the Legislature however did not take up the main budget bill, education and other budget trailer bills or the budget related bills that deal with revenues – the part of the Governor’s proposed budget for 2011-2012 that needs – and still lacks crucial legislative Republican support.

Next Steps

· Both houses will meet again Thursday to possibly take up those measures and other remaining budget related bills.

· The State Senate adjourned at 09:04 PM Wednesday evening and will reconvene Thursday morning at 11:00 AM.

· The Assembly adjourned at 09:23 PM Wednesday evening and will reconvene Thursday morning at 11:00 AM.

California Faces Enormous On-going Budget Crisis

California faces a projected budget shortfall of over $25 billion through the end of June 30, 2012, and on-going projected deficits of over $20 billion through at least 2016 unless permanent action is taken by the Legislature and Governor – a point raised by Sen. Mark Leno (Democrat – San Francisco), chair of the Senate Budget and Fiscal Review Committee and Assemblymember Bob Blumenfield (Democrat – Van Nuys, 40th Assembly District), chair of the Assembly Budget Committee when they both brought the budget “trailer” bills up for votes on the Senate and Assembly floors today.

Several legislative Republicans in both houses, while supporting many of the budget “trailer” bills, responded that legislative Democrats that some of the reductions were not real cuts and that the budget plan was not addressing critical issues that they believe could mean big savings to the State in reforms to public employee pensions and State regulations.

What the Legislature Did Today (March 16th)

· Both houses approved a total of 8 budget related (“trailer”) bills:

· Approved 5 budget “trailer” bills dealing with health and human services spending reductions dealing with health (Medi-Cal, Healthy Families, Adult Day Health Care), Developmental Services (regional centers), Human Services (In-Home Supportive Services, CalWORKS, SSI/SSP, Multipurpose Senior Services Program); Proposition 10 (Children and Families First); and Proposition 63 Mental Health Services Act Funding.

· Approved 1 budget “trailer” bill dealing with General Government [SB 80, passed Assembly 54 to 20 and State Senate 33 to 2]

· Approved 2 other budget related bills dealing with transportation and cash management (SB 82, passed Assembly 54 to 2 and State Senate 39 to 0).

· The Assembly took up for a vote when it first convened at 1 PM this afternoon the budget “trailer” bill dealing with the elimination of Redevelopment Agencies but the initial vote fell short of the needed 54 votes for passage. Throughout the evening the bill was called up again and again for a final vote tally, but fell two votes short of the 54 votes needed for passage. The bill will be taken up again on Thursday by the Assembly. The Senate did not take up that bill but was waiting Wednesday evening for the Assembly to approve it – which did not happen.

· Senate Budget and Fiscal Review Committee met just after the Senate convened at 1 PM Wednesday afternoon (March 16th) to formally review and refer to the Senate floor, all of the budget trailer bills. The Assembly suspended its internal rules that require the Assembly Budget Committee to meet and refer the bills to the floor, and instead took up some of the budget trailer bills directly for a vote on the floor.

· The Senate Budget and Fiscal Review Committee amended today (March 16th) at 2 of the budget trailer bills – health (AB 97) and transportation (AB 105), before the bills were voted on by the full State Senate and Assembly. The committee also amended the education trailer bill, which did not come up for a vote in either house. The amendments made to the health budget trailer bill (AB 97) deleted provisions dealing with the “Maddy Medical Emergency Services Fund” and the extension of the (AB 1422) Medi-Cal managed care gross premium 2.3% tax. All other provisions in the health trailer bill (AB 87) remained the same.

· With the exception of those two bills, all the other budget trailer bills approved today by the Legislature were not amended or changed today.

What Happens Next

· It is not clear if the Legislature will actually send the approved bills to the Governor immediately or hold them until the main budget bill and the revenue related bills are also approved. Normally the main budget bill is passed first, followed or trailed by the budget “trailer” bills.

· Legislature still needs to pass the main budget bill, and several other budget “trailer” bills dealing including one that will draw some controversy among Democrats – education, which contains $1.5 billion reductions in State general fund spending for higher education, though no real reductions for K-12 public education. The $500 million reduction in State general fund spending for community colleges has major impact on students with disabilities, mental health needs, the blind and others.

· Legislature also needs to obtain 2 Republican votes in the Assembly and 2 in the State Senate to approve the Governor’s proposal to extend for five years temporary tax increases on a June special election ballot.

· Until the main budget bill – which only needs a majority vote, and the special election tax extension proposal – which needs 2/3rds vote or 54 votes in the 80 member Assembly and 27 votes in the 40 member State Senate – are approved, the budget crisis continues unresolved.

Budget Takes Majority Vote To Pass Now – But Placing Measures on Election Ballot Or Raising Taxes Still Requires 2/3rds Vote

· While the overall main budget bill for 2011-2012 can be passed by a simple majority vote – the specific proposal to place on a June special election ballot proposals to extend for 5 years temporary tax increases in order to balance the State budget, requires 2/3rds votes in both houses or 54 votes in the Assembly and 27 votes in the State Senate.

· That means, if all Assembly Democrats and all Senate Democrats vote for the proposal, 2 Assembly Republicans and 2 Senate Republicans would still be needed to pass it.

· The proposed extension of the temporary tax increases (increases which are set to expire on June 30th) are crucial to Governor Brown’s budget plan because it makes up over $11 billion of the overall $12 billion revenue proposals. Spending reductions and fund shifts and new federal money make up over $12.5 billion.


· Latest actions of budget related (“trailer”) bills, listed by subject area.

· The bill number of the actual budget trailer bill – or even the main budget bill – can change during the time it takes to win passage, even if the contents of the bill largely remain the same.

· Both the State Senate and Assembly amended identical budget “trailer bill” language into several bills that each house could use to vote, on Wednesday. Both houses amend identical bills because sometimes one house may get delayed on a certain bill – while the other house may end up passing several (as was the case when the vote actually took place Wednesday). The budget trailer bill that passes first out of one house – is likely (but not always) the bill that ends up being passed by the second house and then sent on to the Governor.

· Sometimes neither identical bill ends up passing – and a totally different bill number is used to amend the same trailer bill language or language that is slightly different.

· “Urgency” clause or provision means the bill is considered an “emergency” or “urgency” that needs to take effect immediately after the Governor signs it. A bill with such a provision needs 54 votes (2/3rds) in the Assembly and 27 votes (2/3rds) in the State Senate. While the bill takes effect immediately if signed by the Governor, the specific things (such as a specific spending cut) could have a later effective date. If it doesn’t, then the spending cut or change in the bill takes effect immediately.


· The main budget bill does not contain the changes in State law needed to implement reductions or savings in the Governor’s 2011-2012 State Budget (as modified by the Budget Conference Committee on March 3rd).

· The changes in state law needed to implement reductions in the main budget bill are contained in the various budget “trailer bills” below – called “trailer bills” because those bills follow or trail the main budget bill after it is passed and signed into law by the Governor.

SB 69 – Main Budget Bill

Download copy of this bill (704 pages):

LAST AMENDED: 03/07/2011 (Budget Conference Committee report)

LOCATION: State Senate Floor

LATEST ACTION 03/16/2011: No action or vote was taken on the main budget bill.


· Includes reductions to Medi-Cal, including elimination of Adult Day Health Centers, 10% reduction to Medi-Cal providers, mandatory co-payments, reductions to Healthy Families program and other cuts [MSSP reduction, though a Medi-Cal program, is under “Human Services Budget Trailer Bill”]

· Contains provision dealing with Lanterman Developmental Center closure transition.

· Bill was amended 03/16/2011 in the Senate Budget and Fiscal Review Committee (see below CDCAN Note).

AB 97 – Health Budget Trailer Bill

Download copy of this bill (133 pages):

LAST AMENDED: 03/16/2011

LATEST ACTION 03/16/2011: PASSED State Senate 36-2 with urgency provision. PASSED Assembly 56 to 14 with urgency provision.

NEXT STEPS: Goes next to the Governor for approval.

CDCAN NOTE: Initial vote on this bill (around 5:15 PM) was taken by mistake without the urgency provision, which requires 27 votes. That provision was added and the vote was retaken at 7:34 PM. This bill was amended in the Senate Budget and Fiscal Review Committee today (March 16th) that deleted a provision dealing with the Maddy Emergency Medical Fund and also the provision that extended the Medi-Cal Managed Care tax under AB 1422 (enacted in 2009). All other provisions of the bill remained the same.

SB 72 - Human Services Budget Trailer Bill

Download copy of this bill (80 pages):

LAST AMENDED: 03/14/2011

LATEST ACTION 03/16/2011: PASSED Assembly 54 to 6 with urgency provision. PASSED State Senate 39 to 0 with urgency provision.

CDCAN NOTE: No changes were made to this bill since 03/14/2011.


· This budget related (trailer) bill includes provisions dealing with regional centers and developmental services under the Developmental Services budget including reductions achieved through imposing conflict of interest, audit requirements, administrative caps for those agencies with “negotiated rates”, accountability and transparency measures, and third party liability.

· Also included is continuation of the 4.25% reduction in payments to nearly all regional center providers and regional center operations through at least June 30, 2012.

· Included is direction from Legislature to the Department of Developmental Services on proposal it wants to review and consider approving to achieve the $174 million (previously $150 million) reduction in State general fund spending in regional center community based services

· Note: some provisions dealing with Lanterman Developmental Center transition are in the Health trailer bills (AB 97)

SB 74 – Developmental Services Budget Trailer Bill

Download copy of this bill (36 pages):

LAST AMENDED: 03/14/2011

LATEST ACTION 03/16/2011: PASSED Assembly 56 to 16 with urgency provision. PASSED State Senate 35 to 1 with urgency provision.

NEXT STEPS: Goes to Governor for approval.

CDCAN Note: No changes were made to this bill since it was amended 03/14/2011.


· This budget related (trailer) bill contains the necessary changes in State law dealing with the shifting (or reduction) of $1 billion in Proposition funds to Medi-Cal children’s programs.

· Of this amount,$50 million will be from accounts, including reserve funds as specified, under the State Commission; and $950 million will be from combined balances, including reserves as specified, under the County Commissions.

· County Commissions that received less than $600,000 in California Children and Families Trust Fund revenues in the 2009-2010 State budget year are exempt.

AB 99 – Proposition 10 Budget Trailer Bill

Download copy of this bill (7 pages)

LAST AMENDED: 03/14/2011

LATEST ACTION 03/16/2011: PASSED State Senate 36 to 3 with urgency provision. Assembly PASSED 55 to 16 with urgency provision.

NEXT STEPS: Goes to Governor for approval.

CDCAN NOTE: No changes were made to this bill since 03/14/2011.


· This budget related (trailer) bill contains necessary changes in State law to shift (reduction) about $900 million from Mental Health Services Act to 3 mental health community based programs (EPSDT, or Early, Periodic, Screening, Diagnosis and Treatment Program); mental health services for special education students under AB 3632; and Medi-Cal mental health managed care services.

AB 100 – Mental Health Services Act

Download copy of this bill (17 pages):

LAST AMENDED: 03/14/2011

LATEST ACTION 03/16/2011: PASSED State Senate 37 to 2 with urgency provision. PASSED Assembly 55 to 14 with urgency provision.

NEXT STEPS: Goes to Governor for approval.

CDCAN NOTE: No changes were made to this bill since 03/14/2011.


· This bill deals with elimination of redevelopment agencies and transition process for the orderly wind-down of redevelopment agencies activities, including completion of some mid-phase projects.

· Establishes “Successor Agencies” to the redevelopment agencies effective July 1, 2011, that would be, except in certain situations, such as those involving an Redevelopment Agencies based on a joint powers authority, the entity that created the redevelopment agency.

· If no local agency chooses to be the “Successor Agency”, a designated local authority would be formed, whose three members would be appointed by the Governor.

· Allows for the continuation of housing activities by the “Successor Agency”, which would be permitted to assume responsibility for housing obligations and to use the existing balance in the low and moderate income housing fund Set-aside for these purposes.

· If the “Successor Agency” chooses not to assume the housing activity responsibilities, the funds would be transferred to the local housing authority or to the Department of Housing and Community Development

AB 101 – Redevelopment Agencies

Download copy of this bill (64 pages):

LAST AMENDED: 03/14/2011

LOCATION: State Senate Floor

LATEST ACTION 03/16/2011: None

SB 77 – Redevelopment Agencies

Download copy of this bill (64 pages):

LAST AMENDED: 03/15/2011

LOCATION: Assembly Floor

LATEST ACTION 03/16/2011: Vote taken but fell 1 vote short of passage. Reconsideration granted (meaning another vote can be taken on this bill).

NEXT STEP: Will likely be taken up again Thursday either in the Assembly or Senate.

CDCAN NOTE: No changes were made to this bill since 03/14/2011.


· Education trailer bill was NOT taken up by either the full Assembly or State Senate on Wednesday, March 16. The education trailer bill (AB 94) in the State Senate however was formally heard and referred out of Senate Budget and Fiscal Review Committee with amendments today (March 16)

· These two trailer bills include changes to state law to implement reductions to higher education (community colleges, California State University and University of California).

· ONE of these two bills, will be passed by both houses and sent to the Governor, though at this point in time, it is not certain which of the two identical bills will move forward.

AB 94 – Education Finance

Download copy of this bill (108 pages):

LAST AMENDED: 03/16/2011

LOCATION: State Senate Floor

LATEST ACTION 03/16/2011: Bill was heard and referred out of Senate Budget and Fiscal Review Committee with amendments. It was not taken up for a vote on the Senate floor today.

CDCAN Note: This bill now differs from the education trailer bill in the Assembly (SB 70), with amendments made today (03/16/2011) in the Senate Budget and Fiscal Review Committee.

SB 70 – Education Finance

Download copy of this bill (108 pages):

LAST AMENDED: 03/14/2011

LOCATION: Assembly Floor

LATEST ACTION 03/16/2011: None


AB 105 – Transportation Trailer Bill (as amended 03/14/2011)

Download copy of this bill (61 pages):

LAST AMENDED: 03/16/2011

LATEST ACTION 03/16/2011: PASSED State Senate 39 to 0 with urgency provision. PASSED Assembly 66 to 3 with urgency provision.

NEXT STEP: Goes to Governor for approval.

CDCAN NOTE: This bill was amended 03/16/2011 in Senate Budget and Fiscal Review Committee hearing.


· The Assembly and State Senate did NOT take up these revenue related trailer bills on Wednesday, March 16.

· These two identical bills would establish a mandatory single sales factor for apportionment of corporate income tax across states and changes the manner in which the location of sales of service and intangibles are assigned, and would eliminate the enterprise zone tax credits.

· ONE of these two bills, will be passed by both houses and sent to the Governor, though at this point in time, it is not certain which of the two identical bills will move forward.

AB 103 – Taxation – Personal Income and Corporation Tax

Download copy of this bill (156 pages):

LAST AMENDED: 03/14/2011

LOCATION: State Senate floor

LATEST ACTION 03/16/2011: None

SB 79 – Taxation – Personal Income and Corporation Tax

Download copy of this bill (156 pages):

LAST AMENDED: 03/14/2011

LOCATION: Assembly Floor

LATEST ACTION 03/16/2011: None


· The Assembly and State Senate did NOT take any action on this bill.

· This constitutional amendment, titled “The Schools and Local Public Safety Protection Act of 2011" will generate approximately $11 billion by maintaining 2010 sales and use tax rates, vehicle license fee rates, and personal income tax rates for five years.

· These revenues will be dedicated to local public safety services realigned from the State to local governments and to help prevent cuts to local public schools and community colleges.

· This constitutional amendment will also guarantee local governments ongoing funding for realigned public safety services beyond the five-years and provides protections to counties against increased costs from future

SCAX1 1 The Schools and Local Public Safety Protection Act of 2011: Constitutional Amendment

Download copy of this bill (10 pages):

LAST AMENDED: 03/14/2011

LOCATION: State Senate Floor

LATEST ACTION 03/16/2011: None

Monday, February 7, 2011

The Arc Testifies: No More Cuts

Over 200 advocates, service providers and family members stood in a long line to testify on Friday 2/4 at the California State Assembly.
I was proud to lead our contingent from The Arc of San Francisco and highlight our key concerns:
The state cannot balance the budget on the backs of people with developmental disabilities. We've already been cut to the bone with rate freezes for the last 10 years and a 4.25% 'discount' that amounts to a loss of over $100,000 each year--just to The Arc of San Francisco alone. Further cuts would essentially dismantle the Lanterman Act which guarantees the supports our clients need to live in the community.
This idea--that the state will assess the income of families and clients and determine who is eligible for services--is discriminatory and stigmatizes lower income families. The Lanterman Act gave all our children with developmental disabilities in California the right to be served, just like all kids have the right to a public education. Will the State also start a 'means test' to determine elegibility for public school?
The state has asked for concerned families to provide input using an open-ended questionnaire created on Survey Monkey (!). We cannot set policy using an unscientific, unmeasurable and subjective format. We need changes in our system that are based on what's working and not working efficiently in our state.
On February 17th, Thursday at 9:20am in Sacramento, the Senate Budget Committee, chaired by Senator Mark Leno, will be hearing our concerns. JOIN US! Or email/call your legislator to give your feedback on these issues.
Thanks to eveyone who took time to testify on Friday, and to those of you raising your voices for the services and human rights of people with disabilities so that they can be included in our communities--not segregated.

Tim Hornbecker, CEO
(Photo: Tim Hornbecker testifying before the California State Assembly)

Friday, January 28, 2011

New Developmental Services Survey

Message from the CA Department of Developmental Services


The Department has posted a survey on its website to get input on statewide service standards covering:
  • Behavioral Services
  • Day Program, Supported Employment and Work Activity Program Services
  • Early Start Services
  • Health Care and Therapeutic Services
  • Independent Living and Supported Living Services
  • Residential Services
  • Respite and other Family Supports
  • Transportation Services

The survey is anonymous, and will be online until February 15, 2011.

Input is sought from consumers, family members, service providers, regional centers, advocates, policy advisors and the general public.

Thank you for your feedback.

Terri Delgadillo, Director